Privacy Policy

RareConnect respects and protects the privacy of people who use the RareConnect website. Individually available information about you is not disclosed to any third party without first receiving your permission, as explained in this Privacy Policy. The following is a statement of our information gathering and dissemination practices for this website:

What information do we collect?

RareConnect only collects unique information about you (such as your e-mail address and birth month and year) when you specifically and knowingly provide such information (for example, at the time of registration). You are encouraged to use a unique username at the time of registration, and not an easily identifiable one (such as your name). By providing personal details you are consenting to its use. Such personal information will be used to identify you as a unique user, and the information will not be shared with any other entity or organization, unless you have specifically requested us to do so.


RareConnect uses Google Analytics to anonymously monitor how users move through the site and uses the information to improve user experience.

RareConnect uses a feature, called “local storage.” Local storage is used to keep login sessions alive and record the content contributions of logged-in users: posting, commenting, flagging, editing posts, joining communities, etc. If your computer does not support local storage, cookies will be used instead. Cookies store small amounts of data on your computer about your visit to our site.

Traffic Data

Each time a visitor comes to the RareConnect website, we collect some basic technical information. We use software to keep track of traffic to our site and acquire such information as the location from which the traffic originates and which particular pages within the site are being viewed and for how long. We may know for instance, that we had 1,000 hits and 800 individual visitors to our website today, but we do not know their names, addresses, or other personal information.

With whom does RareConnect share information?

We will respect your privacy. No personal, non-public information about you will be given to anyone or be published without your permission, unless the law requires us to do this.

Is my personal information secure?

This site has security measures in place to protect the loss, misuse and alteration of the information under our control. Security is the responsibility of our hosting company. RareConnect has a contract with the company to ensure that personal data is protected by passwords, firewalls and other security.

RareConnect is not responsible for the privacy practices or the content of web sites external to the domain “”.

Who can I ask if I have additional questions?

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you may contact: