Página de Pam Bower moderador

« I'm thrilled to be a member of this Rare Disease Community and am looking forward to connecting with many more people from all around the world in multiple languages. I live in Halifax, Nova Scotia, Canada. My mother-in-law, Ida Comeau Richard who I adored, was diagnosed as OPCA (MSA-C) in 1994, she passed away in 1998 at only age 55. I have been active with online support groups for MSA since 1995 when at Ida's request I searched for more information about this puzzling disease she had been diagnosed with. In my journey I discovered others looking for the same information and was happy to share what little I had at the time. I'm currently a moderator of the original shydrager MSA online support group that I had joined back in 1995. http://groups.yahoo.com/group/shydrager Since 2010 I've been an admin on Miracles for MSA which has very quickly become a rallying point on facebook for MSA Awareness activities. http://www.facebook.com/Miracles.for.MSA As well, I maintain the MSA Awareness website with what I feel are some of the most useful and relevant links for MSA information. I hope to be able to share some of this information on this site as well. http://www.MSAawareness.org My passion is connecting people who are looking for support and information about this disease. I can hook you up if you need MSA info or are looking for someone from your area who also is interested in connecting. Email me anytime at pbower@accesscable.net Remember March is Multiple System Atrophy Awareness Month! »

  • publicado hace más de 2 años

    En respuesta a Bienvenidos: Me encanta esto, Rita. ¡¡Unirnos todos en todo el mundo es exactamente lo que necesitamos!! xoxox

  • publicado hace más de 2 años

    En respuesta a Bienvenidos: Rob the translation service is awesome, thank you so much from all in the MSA community!

  • publicado hace más de 2 años

    En respuesta a Bienvenidos: Thanks Allie! Is there anyone from Canadian Organization for Rare Disorders (CORD) involved as a moderator/translator?

  • publicado hace alrededor de 1 año

    En respuesta a MSA International Ambassadors: Thanks for posting this Rob, I saw it and realized I had recently made changes and the link was broken but I have restored it to it's old location.

  • publicado hace alrededor de 1 año

    En respuesta a Conciencia y ayuda: Hola Pepe. Along with staying connected in this forum you may also wish to join the Spanish MSA group on facebook http://www.facebook.com/groups/MSASpain