RareConnect respects and protects the privacy of people who use the RareConnect website (www.rareconnect.org). Individual control and transparency of one’s personal information are core RareConnect principles.
RareConnect only collects unique information about you (such as your e-mail address and birth month and year) when you specifically and knowingly provide such information (for example, at the time of registration). You are encouraged to use a unique username at the time of registration, and not an easily identifiable one (such as your name). By providing personal details you are consenting to its use. Such personal information will be used to identify you as a unique user, and the information will not be shared with any other entity or organization, unless you have specifically requested us to do so or we are required to do so by law.
RareConnect uses data that you share with the platform in several ways, according to the sensitivity of the information and your privacy settings:
RareConnect uses Google Analytics to anonymously monitor how users move through the site and uses the information to improve user experience.
RareConnect uses a feature, called “local storage.” Local storage is used to keep login sessions alive and record the content contributions of logged-in users: posting, commenting, flagging, editing posts, joining communities, etc. If your computer does not support local storage, cookies will be used instead. Cookies store small amounts of data on your computer about your visit to our site.
We take data protection seriously. This site has security measures in place to protect the loss, misuse and alteration of the information in our control. Despite the mechanisms in place to keep all information secure and to protect your privacy, there is always a risk of a privacy breach. If a privacy breach occurs, RareConnect will take immediate steps to contain the breach, and contact you as soon as reasonably possible to inform you of the breach, explain what data may have been compromised and suggest steps you might consider taking to secure your personal information.
RareConnect is not responsible for the privacy practices or the content of web sites external to the domain “RareConnect.org”.
You can export a copy of your posted content from your RareConnect account if you want to back it up or use it outside of RareConnect at any time. This can be done in your Account Settings.
If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you may contact: firstname.lastname@example.org