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Portuguese CDG Association
The Portuguese Association for CDG and other Rare Metabolic Diseases (APCDG-DMR) vision is developed from the belief of its founder that to achieve the hopes of patients and families who suffer from rare diseases, key stakeholders need: To include patients and their representatives as full partners during the overall research and clinical program; To be patient-centric in their thinking. This is a very promising and innovative approach whereby all parties combine their strength and expertise in a collaborative, dynamic and shared spirit. That is the key driver to achieving transformative, potentially life-saving therapies that can revolutionize the clinical treatment of a disease and offer new life to patients and concerned families.


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