The newly formed European LAM Patient Federation will focus on supporting LAM research and will coordinate communication with existing LAM patient groups.
The Federation will work together to raise funds for ongoing scientific investigation, will coordinate and collect Europe wide data and will establish a European LAM Tissue Bank; the new Federation will bring together and will collaborate with research teams working internationally.
The European LAM Patient Federation will work closely with Eurordis, the European Rare Disease Organisation. Working to find a cure for LAM and strengthening the resolve to bring countries within Europe together on this issue is seen by patients and researchers as an urgent public health issue.
Laying the groundwork and the creation of the Federation is our first priority; this initiative, from LAM Italia offers hope to women with LAM in all European countries and seeks a mandate to draw up and implement a plan of action.
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We seek support for this initiative from established and new LAM Patient Organisations in Europe as well as from individuals and groups involved in LAM research.
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