Create your Rareconnect Account


Thank you for your interest in joining RareConnect. By registering, you will gain access to stories and information about the specific rare disease of interest to you. You'll also be able to join the conversation with other individuals living with that disease.


Do you already have an account one of these sites? Click the logo to sign in through that site:


If you do not already have an account with any of the above sites, please fill out the following form: (Required fields are marked *)

Note: please only use dash, underscore and low-case alphanumeric characters (4 characters minimum)
Note: must be a valid email address
Note: must contain between 6 and 30 characters

Adding your country and city will help us to more easily connect you with other people close to you
By adding your community and connection to rare diseases, it will be easier to find content and discussions that are important to you and to connect with people who share similer experiences

However, if you are unsure, not ready to join yet, or you can't find your community, don't worry. You can just leave this field blank. You can always add or edit your info/role later on.
* If you can’t find your community, just leave this field blank and search or add a new discussion in our discussion groups later on " /topics/"
It is our practice to keep you informed regularly via email regarding activity in communities in which you are a member as well as portal feature announcements. If you would prefer not to receive these updates, please uncheck this box.
Please fill in the captcha in order to ensure you are not a bot Security code*

If for any reason you cannot read the words displayed simply click on the first of the small blue buttons (to the right) to generate a new series of words

You must accept the terms and conditions to register Terms of Service*