Lisa Engel's Page
« I have 3 children my middle child has HSP and I am desperatly looking for more information! »
published 26 days ago
Children with HSP Would anyone with younger children be interested in contacting me regarding their journey with HSP. There is such limited information out there and I am hungry for answers. My email is lila_mk@ho...
published about 3 hours ago
research I am trying very hard to find a research hospital for my daughter. She continues to receive botox every 4 months which is extrememly expensive, our insurance barely touches it and we usually meet ...
published 8 months ago
insurance coverage financial hardships My question is does anyone out there have any good suggestions for insurance we could purchase that would assist with the payment of our daughters medical bills. We have primary insurance covered ...
published 10 months ago
5 Year Old Daughter Diagnosed with HSP My 5 year old daughter was diagnosed within the last year with HSP. She has spasticity in her legs with weakness in her abdominal trunk and lower calf muscles. She started out not walking, then ...
published 27 days ago
In reply to Registration for the SP Foundation conference this summer: Would love to travel with my husband and daughter who has HSP however we are from Michigan and that would be quite the expense.