Tania Tirraoro's Page

« UK & Europe Advisor, The Ehlers Danlos Society »

  • published 11 days ago

    EDS New Classification 2017 The new classifications for EDS have been announced. It's naturally caused concern and some confusion so I have written about it on my website to help people understand the narrative and find ...

  • published 16 days ago

    New names for EDS types - webinar explains it all The 2017 EDS Classifications: Your Questions Answered! On March 15th, join Dr. Clair Francomano and Lara Bloom live from the Ehlers-Danlos Society Center for EDS Research and Clinical Care in Ba...

  • published 8 months ago

    Shoulder surgery and EDS Has anyone shad shoulder decompression surgery, to shave some bone off the shoulder joint? I have to have this soon and am told the recovery time can be long and painful (sob). Any experiences wo...

  • published 9 months ago

    EDS UK newsletter The new EDS UK newsletter is out - it's every Friday and if you click the link you should be able to subscribe to get it emailed and find out what the charity is up to. http://erinhsimons.cma...

  • published 11 months ago

    EDS Awareness Month May is EDS awareness month! I have a blog where I sometimes write about EDS. I'm planning two posts this month but I though I would write about why EDS seems to be such an enigma in the medi...

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