Tania Tirraoro's Page

« UK & Europe Advisor, The Ehlers Danlos Society »

  • published 7 months ago

    Shoulder surgery and EDS Has anyone shad shoulder decompression surgery, to shave some bone off the shoulder joint? I have to have this soon and am told the recovery time can be long and painful (sob). Any experiences wo...

  • published 8 months ago

    EDS UK newsletter The new EDS UK newsletter is out - it's every Friday and if you click the link you should be able to subscribe to get it emailed and find out what the charity is up to. http://erinhsimons.cma...

  • published 10 months ago

    EDS Awareness Month May is EDS awareness month! I have a blog where I sometimes write about EDS. I'm planning two posts this month but I though I would write about why EDS seems to be such an enigma in the medi...

  • published 10 months ago

    Managing Dislocations I'm posting something that came on the EDSUK newsletter, by Jason Parry, who was my physio when I did the hypermobility rehab course at Stanmore, who was really great. Hope some of you find it...

  • published about 1 year ago

    When it's all too much... How do you bring yourself back from the edge, when everything seems pointless? Right now I have pain on top of regular pain and I have been given morphine. So there is nowhere left to go and even t...

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