ASANOL Atrofia de Nervio 's Page moderator

« La Asociación de Atrofia del Nervio óptico de Leber (ASANOL), es una entidad sin ánimo de lucro creada el 2 de octubre de 2010 en España. »

  • published 3 months ago

    LHON patient advisory committee Hi. A LHON patient advisory committee is being organized at European level. Different patient organisations are going to participate but we want to know your aspirations. What aspects are you conce...

  • published 5 months ago

    Encuentros nacionales En esta nueva sección propongo que se nos informe de los encuentros nacionales o locales de afectados

  • published 18 days ago

    Let's improve Rareconnect Many peers have presented issues or improvements with this platform. Maybe we could try to determine which aspects we should improve, as to let the managers know. ¡Thank you! The majority of the...

  • published about 1 year ago

    Terapias de fecundación: "Tres Padres" y otros ensayos similares EE.UU. En las últimas fechas se están desarrollando varias iniciativas para que las parejas con mujeres portadoras que estén pensando en tener hijos puedan tenerlos sin que estos sean portadores y por tan...

  • published 18 days ago

    Being a mother of a LHON child Bearer mothers count with a major role in this pathology. They are used to feel guilty about their children's development. Those who have gone through this have much to do helping others. Thos...

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