We want to share with you this crowdfunding project that aims to raise money for Lowe Syndrome research. We have already brought together families from several countries that, through data sharing with specialists, and through their associations, are generating more knowledge about the disease. On this video (in Spanish) we presented the project on Spanish TV http://www.rtve.es/alacarta/videos/para-todos-la-2/para-todos-2-entrevista-mercedes-serrano-manuel-armayones/1835811 /

If you want to help us spread our project, which is a European project! not just a Spanish project, we'll be very grateful! https://f4r.org/web/projects/view/2