Many peers have presented issues or improvements with this platform. Maybe we could try to determine which aspects we should improve, as to let the managers know. ¡Thank you!
The majority of the members of this community are affected by LHON and... they are different. Therefore, I will try to determine some of the problems that they have told me about: 1) According to some of them, the platform is not adapted to their vision, and the software they are using does not read anything. 2) Others tell me that this kind of platforms can't substitute Facebook, where the majority of LHON groups are still alive. The difference is that RareConnect has no app. format. Without an application on the phone, it is uncomfortable to participate.