The latest issue of our Hoffnungsbaum newsletter with focus on TIRCON/ Research is now available via the following link:

Hoffnungsbaum e.V. is the German NBIA patient organization. Our current newsletter informs you about:

  • Four years TIRCON – Review and conclusion
  • Hoffnungsbaum is pleased with Hertie prize
  • Final Conference of the TIRCON project
  • NBIA Alliance deliberates on further funding of the NBIA patient registry
  • Acceleration in NBIA research
  • And much more…

If you are interested you can access the German contents by using the Google translator (

For additional information about NBIA and our organization, please visit our website:

We hope you will enjoy reading.

With kind regards Heike Jaskolka Hoffnungsbaum e.V.