Welcome - Von Hippel-Lindau (VHL) Community

What is Von Hippel-Lindau (VHL) ?

Von Hippel Lindau (VHL) is a rare genetic cancer syndrome, an alteration in the VHL-tumor-suppressor gene, which puts the individual at increased risk of developing tumors in various organs throughout life.

Source: Participating patient organizations visible below

Von Hippel-Lindau (VHL) Resources

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Latest Member Stories

My story, my father.

by carlosromerosoto published 9 months ago 4 comments

See ... it was a quiet day when I received a message from my sister telling me that my other sister was in the hospital emergency room for head pai...


by vickybatel published about 1 year ago One comment

There, after tens of studies carried out, he was operated on a few tumours in both eyes' retina in March 2001. In one of them they put a plate that...