International VHL Medical Symposium 2014
Here's a selection of information from patients & professionals to better understand Von Hippel-Lindau.
Where: Madrid, Spain
When: from 23 to 25 October 2014
Dr. Jose de Campos Guttierez and Dr. Elena Kuzak, who participated in the Houston Symposium in 2012 as well as Rio 2010, are very excited about this project! He has seen VHL patients from all over Spain since 2010 and he is having success treating patients that other neurosurgeons had thought were hopeless, especially in the brain stem and spinal cord. In addition to his talent, he is building his knoweldge and experience with hemanbioblastomas. The medical center where he works, Fundación Jiménez Díaz, was recognized by the regional government (Madrid) as one of the most experienced in VHL.
A blog has been created to keep everyone informed about the work of Alianza VHL, www.alianzavhl.org. Click on “Diario de actividades” (a book with a ball pen in the right column) or the direct link is alianzakarina.blogspot.com. Additional details here (in English) or in the AlianzaVHL website (in Spanish) will be posted.
For more information, contact firstname.lastname@example.org.