Welcome - Von Hippel-Lindau (VHL) Community

What is Von Hippel-Lindau (VHL) ?

Von Hippel Lindau (VHL) is a rare genetic cancer syndrome, an alteration in the VHL-tumor-suppressor gene, which puts the individual at increased risk of developing tumors in various organs throughout life.

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Von Hippel-Lindau (VHL) Resources

More members stories

Latest Member Stories

Yet another brain tumor

by Crystal1981 published 1 day ago No comment

Now the eighth brain tumor has been discovered in me... This morning was another one of these black moments full of fear and sadness, when I decide...

VHL Disease

by Konny published 7 months ago 9 comments

I received my diagnosis of disruption of the hypothalamic-pituitary axis 2 weeks ago and am totally shocked. Although I knew that something was wro...