Welcome - Von Hippel-Lindau (VHL) Community

What is Von Hippel-Lindau (VHL) ?

Von Hippel Lindau (VHL) is a rare genetic cancer syndrome, an alteration in the VHL-tumor-suppressor gene, which puts the individual at increased risk of developing tumors in various organs throughout life.

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Von Hippel-Lindau (VHL) Resources

More members stories

Latest Member Stories

Im 26 years old, living abroad alone and i was just diagnosed with VHL.

by Amr_fahmy published about 1 month ago
3 comments

I'm 26 years old living and working abroad alone, i'm not married, and my family is back home.

I had anxiety problems throughout my life, but i...

I discovered two years ago that I Have VHLS

by futso published about 1 month ago
One comment

How do I continue running with VHLS without any complications and my dream is to run Boston Marathon, Chicago and New york marathon not to forget L...

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