Welcome - Von Hippel-Lindau (VHL) Community

What is Von Hippel-Lindau (VHL) ?

Von Hippel Lindau (VHL) is a rare genetic cancer syndrome, an alteration in the VHL-tumor-suppressor gene, which puts the individual at increased risk of developing tumors in various organs throughout life.

Source: Participating patient organizations visible below

Von Hippel-Lindau (VHL) Resources

More members stories

Latest Member Stories

Mi historia con von hippel lindau

by 1121 published about 6 hours ago
No comment

Tengo 31 años alos 23 yo sufri muchos dolores de cabeza y sufri desmayos me fui ala sala de emergencia y me dijeron que tenia un tumor cerebral lam...

A life not so simple

by blabla55 published 2 months ago

Hello all, I am a teenager looking for answers or simply trying to understand...
My grandfather died of VHL disease before I was born... Then my f...

Partners and Patient Groups