Welcome - Undiagnosed diseases Community

What is Undiagnosed diseases ?

A term used to describe people who are thought to have a genetic syndrome or condition that doctors have so far been unable to identify.

Undiagnosed diseases Resources

More members stories

Latest Member Stories

loved father

by nancynayiveorjuelacruz published 2 months ago
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I have my father who has been getting worse very fast, he started losing sleep and he ended up completely abandoning sleeping, he never lies down, ...

My real world

by udruzenebezdijagnoze published 2 months ago
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I feel a gentle kiss and stroking on my head. Like from a distance I hear a gentle voice of my Mom while she is waking me up for school. I am tryin...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.