Welcome - Undiagnosed diseases Community

What is Undiagnosed diseases ?

A term used to describe people who are thought to have a genetic syndrome or condition that doctors have so far been unable to identify.

Undiagnosed diseases Resources

More members stories

Latest Member Stories

Clementina, alla ricerca di una diagnosi da 21 anni

by Federico published 3 days ago
No comment

Sono il papà di Clementina, 21 anni.
La nascita del primo figlio è un momento indimenticabile, il suo arrivo mi ha regalato una gioia che non avre...

What is wrong with me?

by ElinFiona published 9 days ago
One comment

Have you ever felt a vacuum moving through your arms and legs, like your inner skin are ripped off? This happened to me January 2016. It was extrem...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.