Welcome - Undiagnosed diseases Community

What is Undiagnosed diseases ?

A term used to describe people who are thought to have a genetic syndrome or condition that doctors have so far been unable to identify.

Undiagnosed diseases Resources

More members stories

Latest Member Stories

Alice, unknown syndrome

by Juliyastetsun_91 published 7 days ago
One comment

Hello dear members of the community! My name is Julia! I want to tell you about my special girl, actually why I registered here. About half a year ...


by marilisabruno published 10 days ago
One comment

Anna was born in March 2014 and is a baby born of 3600 g in good condition. She had initial difficulty in sucking and a scarce increase in weight, ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.