Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

Don't give up hope

by groovychick published 16 days ago 7 comments

Hi all. I am a 49 year old female living in the UK. I am of Caribbean descent. I was diagnosed with TMAU in 2010 and after having children, it w...

Tips on controling body odor

by anon5ca5ffda published 17 days ago 3 comments

1. Capsules of peppermint oil (helps with symptoms of Irritable bowel syndrome);
2. Active charcoal;
3. Liquide chlorophyl;
4. Low pH soaps and ...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.