Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

Smell Free...? Hopefully

by kennetfia published 2 days ago

Hey everyone, So I first noticed my smell when I was about 15. It was a regular day of playing basketball at the youth center and all of a sudden s...

Tmau/odor problem

by Marisaflorez published 4 days ago

I need to know if people who says that this smell is like fart has mucus? Any other symptom? Thanks

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.