Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

A Strict Routine

by beanje published 16 days ago
49 comments

My husband has lived with tma all his life and we have worked together to fight it. We have been married 27 years and he is now 55. He does not sme...

Be brave

by Cin16 published 2 months ago
24 comments

Life is not easy but you must be brave. God gives great battles to his best soldiers. Do not lose faith.

Hello! How are you?
Ah! It's so hard...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.