Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

hi, just an eye opener for me

by luvshines published about 22 hours ago One comment

Hi I'm sharing my experience in hopes that this can help people manage this. I've been living with this 10 years and am past even giving much atte...

Another job lost

by stilltrying2 published about 1 month ago 8 comments

The crammed and stuffy call center does not welcome tmau, especially for a 33 year old with no fashion sense. most employees are younger more upbea...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.