Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

Ambient smell

by Marisaflorez published about 1 month ago
20 comments

Hi. What happens to me is that it sometimes I feel a strange smell in the air. It is not that it has permanent bad odor. I can not smell the skin, ...

A Strict Routine

by beanje published about 1 month ago
59 comments

My husband has lived with tma all his life and we have worked together to fight it. We have been married 27 years and he is now 55. He does not sme...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.