Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

My experience with Trimethylaminuria when I was 18

by ichigo published 3 days ago 17 comments

I was 18 when I had Trimethylaminuria. I didn`t know what it was back then. I thought it was just excessive gas or flatulence. I knew I smelled ...

Another job lost

by stilltrying2 published about 1 month ago 8 comments

The crammed and stuffy call center does not welcome tmau, especially for a 33 year old with no fashion sense. most employees are younger more upbea...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.