Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

A Strict Routine

by beanje published 17 days ago

My husband has lived with tma all his life and we have worked together to fight it. We have been married 27 years and he is now 55. He does not sme...

Tips on controling body odor

by anon5ca5ffda published 3 months ago

1. Capsules of peppermint oil (helps with symptoms of Irritable bowel syndrome);
2. Active charcoal;
3. Liquide chlorophyl;
4. Low pH soaps and ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.