Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

Is this TMAU2?

by Gianni_G published 3 days ago
No comment

Hi, i'm 25 Male from in italy and last year i had a very bad stressful period. During this for the first time in my life people starts to tell me t...

This is Torture

by tortured-soul published 5 days ago

My life has been a complete NIGHTMARE ,work wise and socially. I find myself being very uncomfortable , insecure , isolated , depressed , ashamed ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.