Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories


by Attraction published 1 day ago

I have been suffering with chronic bad breath for 6 years. It has got to the point I simply can't go out in public, as no matter what I do, even us...

Sufriendo por los olores

by Esperanza1 published 3 days ago

Vivir con esto para mi ha sido muy dificil, me he llegado a sentir como minusvalida , paralizada sin poder avanzar en mi vida sin poder hablar con...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.