Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

My fortress

by tailanesalves published about 1 month ago
12 comments

Since I`m 11 my body exhales a bad odor and it gets worse as time passes, this year of 2016 it is worse than ever, and there is no soap, cream, deo...

TMAU2 is a yeast infection of genital organ at the pelvic region and can be cured

by jasmine711 published about 1 month ago
35 comments

I am so glad for that I have found this forum. It's been a lonely journey. There hasn't been anyone who would talk to me upon this illness. The sto...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.