Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

A Strict Routine

by beanje published about 1 month ago

My husband has lived with tma all his life and we have worked together to fight it. We have been married 27 years and he is now 55. He does not sme...

Never been told, just left alone!

by Hidden_Girl published about 1 month ago

Let me just jump right in. I grew up in a alcoholic and drug riddled home! My father beat my mom on a regular basis, and not just a slap or punch, ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.