Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

bad odour

by diego_c published 7 days ago
One comment

hello, well, I don't know how to start, I read your comments searching on google and also have this. Now I'm 22 I realized I had this 3 years ago. ...


by nofun published about 1 month ago

Being fifteen can be really hard: fighting with siblings, pus-filled spots breaking out, troubles with the boyfriend or run-ins with the parents. B...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.