Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

Im new

by Nicholas1122 published 5 days ago
6 comments

All of this B.S started when I was 13. I was in seventh grade at that time. I was confident that my 7 grade year would be great and wonderful. But ...

Tears and feeling defeated

by EmpressN published 11 days ago
12 comments

If it was not for my child I would see no need to continue living this life. I can't say people are mean because if I was not afflicted with this d...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.