Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

Please help me!

by firwaq published about 7 hours ago
One comment

Thank you

Paranoia and Overthinking

by zoe0123456789 published about 11 hours ago
6 comments

So basically, about 3 years ago a few high school boys told me I 'smelt like fish' and they laughed about it. As a sufferer of OCD (My dad had OCD ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.