Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories

TMAU in Deutschland

by malena published 9 days ago

I'm from Germany. (Just hope to find other affected)

I've been suffering from a bad body odor and bad breath since 6 years now, since I was 14 yea...

My fortress

by tailanesalves published 11 days ago

Since I`m 11 my body exhales a bad odor and it gets worse as time passes, this year of 2016 it is worse than ever, and there is no soap, cream, deo...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.