Welcome - Trimethylaminuria (TMAU) Community

What is Trimethylaminuria (TMAU) ?

Trimethylaminuria (TMAU), formerly called Fish Odor Syndrome, is a metabolic disorder where the body lacks enough enzyme to break down trimethylamine.

Source: Participating patient organizations visible below

Trimethylaminuria (TMAU) Resources

More members stories

Latest Member Stories


by fidelalvarez published 4 days ago

I have accomplished to control this horrible disease with much will power and effort sacrifices well thanks and I hope that you are well do not giv...

My life with TMAU

by Kyubi published about 1 month ago

A couple of weeks ago I searched the Internet about remedies to decrease the odour, until I found this blog and got my diagnose, I understood that ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.