Welcome - TNF Receptor-Associated Periodic Fever Syndrome (TRAPS) Community

What is TNF Receptor-Associated Periodic Fever Syndrome (TRAPS) ?

Tumor Necrosis Factor (TNF) Receptor-Associated Periodic Fever Syndrome (TRAPS), also known as Familial Hibernian Fever (FHF) is a rare, dominantly-inherited autoinflammatory disease that is caused by a mutation in the TNFRSF1A gene.

Source: NOMID Alliance

TNF Receptor-Associated Periodic Fever Syndrome (TRAPS) Resources

More members stories

Latest Member Stories

Oscar, waiting for diagnosis

by rossellag published 23 days ago
3 comments

The first episode occurred 10 years ago, with an acute phase lasting 3-4 days, recurring every month or every two months. He lived here in Sicily. ...

myriad symptoms + chronic pain + genetic testing = TRAPS TNFRSF1A: c.123T>G (p.Asp41Glu) D41E

by kendraz published about 1 month ago
One comment

I wanted to share an overview of my journey that has led to TRAPS. After decades of mysterious health issues and increasingly severe symptoms, in 2...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.