Welcome - Stiff Person Syndrome (SPS) Community

What is Stiff Person Syndrome (SPS) ?

Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive muscle stiffness (rigidity) and repeated episodes of painful muscle spasms. 

Source: NORD Rare Disease Reports

Stiff Person Syndrome (SPS) Resources

More members stories

Latest Member Stories

Getting to know the community

by catherinellanosc published about 1 month ago

I warmly greet and embrace the whole community.
I'm happy to find them. For seven years I've lived with SPS, but only 1 year ago I was formally di...

Living with SPS for the last 2 years

by kimberly57 published 2 months ago
No comment

I've tried Diazepam and Baclofen but received no relief. Currently I'm on Gabbapentin and IVIG therapy. I suffer from overactive nerves and stiffn...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.