Welcome - Stiff Person Syndrome (SPS) Community

What is Stiff Person Syndrome (SPS) ?

Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive muscle stiffness (rigidity) and repeated episodes of painful muscle spasms. 

Source: NORD Rare Disease Reports

Stiff Person Syndrome (SPS) Resources

More members stories

Latest Member Stories

Newly diagnosed with Stiff Person Syndrome. 1/24/2017

by Galonso published about 1 month ago

After a year of suffering hyperalgesia (which lowered the threshold of pain) and suffer episodes of muscle contraction and muscle spasms) I have fi...

Newly (finally) diagnosed...

by kellywright published 5 months ago

Its been about three years now since this whole nightmare started and I feel somewhat relieved to at least have a diagnosis. Within just a few mont...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.