Welcome - Stickler syndrome Community

What is Stickler syndrome ?

Stickler syndrome (hereditary progressive arthro-ophthalmopathy) is a group of genetic disorders affecting connective tissue, specifically collagen.

Stickler syndrome Resources

More members stories

Latest Member Stories

HOY GRETA Y YO NOS HEMOS PELEADO

by sticklercol2 published 18 days ago
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Ella es una mujer fuerte, llena de energía, de esas personas que tienen unos ojos grandes que hablan solos, que transmiten cariño y vitalidad.
Mi...

CALL FOR STICKLER SYNDROME STORIES

by RareConnect team published 28 days ago
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There are still many people living in all regions of the world that have yet to be properly diagnosed with Stickler syndrome. We are reaching out t...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.