Golf Around the World for MPS

Here's a selection of information from patients & professionals to better understand Sanfilippo Syndrome.

Where: (Multiple sites nationally & internationally)

When: on 15 May 2014

Website: https://www.facebook.com/gr...

This series of golf events is part of a synchronised global initiative to draw the world’s attention to our cause and raise research dollars.

We are anticipating 100 tournaments Around the World on the same day which will be May 15, 2014. This day has special significance as it aligns with International MPS Awareness day.

We already have golf tournaments being hosted across the US and around the WORLD! Help us hit a hole in one by volunteering to run a charity golf day at your local course anywhere in the world.

We will help you facilitate the planning, logistics and marketing.

For more information, please contact Megan Donnell megan.donnell@sanfilippo.org.au or Glen O’Neill at curesff@gmail.com