Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

Source: Participating patient organizations visible below

Rett Syndrome Resources

More members stories

Latest Member Stories

Breaking through

by janeboushehri published 7 months ago
No comment

Alice has CNAs - Certified Nursing Assistants - that come each day to assist with therapy, bathing, eating, etc. She adores them. She has always we...

Cannabidiol as a possible treatment of epilepsy in Rett Syndrome

by dutch_rett_syndrome_foundation published 10 months ago

60-70% of girls and women with Rett Syndrome have epilepsy and one-third of these, a total of 20-25%, has epilepsy which is very difficult to treat...