Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

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Latest Member Stories

What is wrong with me?

by ElinFiona published 1 day ago
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Have you ever felt a vacuum moving through your arms and legs, like your inner skin are ripped off? This happened to me January 2016. It was extrem...

Use of Eye Gaze and Eye Tracking Control Technology in Rett Syndrome

by sallyanngarrett published 4 months ago
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Rett Syndrome manifests as psychomotor regression in early childhood, with loss of hand function, hand-wringing behavior, seizures, breathing abnor...