Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

Source: Participating patient organizations visible below

Rett Syndrome Resources

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Latest Member Stories

Use of Eye Gaze and Eye Tracking Control Technology in Rett Syndrome

by sallyanngarrett published 16 days ago No comment

Rett Syndrome manifests as psychomotor regression in early childhood, with loss of hand function, hand-wringing behavior, seizures, breathing abnor...

United for Rett syndrome: Bike 4 Rett

by bike4rett published 3 months ago 4 comments

The united for Rett event (RETTo) was created in order to spread awareness and raise funds for research into the rare disease Rett syndrome. All pr...