Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

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Latest Member Stories

Breaking through

by janeboushehri published 4 months ago No comment

Alice has CNAs - Certified Nursing Assistants - that come each day to assist with therapy, bathing, eating, etc. She adores them. She has always we...

Cannabidiol as a possible treatment of epilepsy in Rett Syndrome

by dutch_rett_syndrome_foundation published 7 months ago 2 comments

60-70% of girls and women with Rett Syndrome have epilepsy and one-third of these, a total of 20-25%, has epilepsy which is very difficult to treat...