Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

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Rett Syndrome Resources

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Latest Member Stories

Use of Eye Gaze and Eye Tracking Control Technology in Rett Syndrome

by sallyanngarrett published about 1 month ago
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Rett Syndrome manifests as psychomotor regression in early childhood, with loss of hand function, hand-wringing behavior, seizures, breathing abnor...

About my beautiful princess and our Rett journey

by danijelaszili published 3 months ago
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When she was around 20 months old, the signs of regression were obvious. Although she finally learned to walk it was not very stable and her falls ...