Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

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Latest Member Stories

Rett Syndrome Meeting in Vienna 2015

by stellapeckary published 8 months ago
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We spoke about the daily problems with our girls, care in nursery, school and "free time". Information about various therapies as well institutes f...

Breaking through

by janeboushehri published about 1 year ago
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Alice has CNAs - Certified Nursing Assistants - that come each day to assist with therapy, bathing, eating, etc. She adores them. She has always we...