Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

Source: Participating patient organizations visible below

Rett Syndrome Resources

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Latest Member Stories

Cannabidiol as a possible treatment of epilepsy in Rett Syndrome

by dutch_rett_syndrome_foundation published 2 months ago 2 comments

60-70% of girls and women with Rett Syndrome have epilepsy and one-third of these, a total of 20-25%, has epilepsy which is very difficult to treat...

Rare Disease Day 2015

by RareConnect team published 2 months ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...