Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

Source: Participating patient organizations visible below

Rett Syndrome Resources

More members stories

Latest Member Stories

My little family

by danijelaszili published about 1 month ago
One comment

My husband and I are from Belgrade, Serbia. He has Hungarian origins and 12 years ago we moved to Budapest and are Hungarian citizens now. I left m...

Rett Syndrome Meeting in Vienna 2015

by stellapeckary published 10 months ago
No comment

We spoke about the daily problems with our girls, care in nursery, school and "free time". Information about various therapies as well institutes f...