Welcome - Rett Syndrome Community

What is Rett Syndrome ?

Rett syndrome is a rare, genetic neurodevelopmental disorder which causes lifelong multiple disability almost exclusively in females.

Source: Participating patient organizations visible below

Rett Syndrome Resources

More members stories

Latest Member Stories

Cannabidiol as a possible treatment of epilepsy in Rett Syndrome

by dutch_rett_syndrome_foundation published 4 months ago 2 comments

60-70% of girls and women with Rett Syndrome have epilepsy and one-third of these, a total of 20-25%, has epilepsy which is very difficult to treat...

Symphony Melody Palma

by Juandevry published 8 months ago One comment


My daughter was always a fighter, never once she stopped fighting. I...