Welcome - Primary Sclerosing Cholangitis (PSC) Community

What is Primary Sclerosing Cholangitis (PSC) ?

Primary Sclerosing Cholangitis is a rare liver disease of the bile ducts, involving an inflammation of the bile ducts (due to unknown cause).

Primary Sclerosing Cholangitis (PSC) Resources

More members stories

Latest Member Stories

Primary sclerosing cholangitis (PSC)

by RareConnect team published 12 months ago
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PSC is believed to be an autoimmune disease. In this type of disease, the immune system mistakenly thinks the own organs or cells are fore...

Living with Primary Sclerosing Cholangitis in Israel

by RareConnect team published about 1 year ago
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After experiencing recurrent significant stool blood he was hospitalized for tests and diagnosed with UC (Ulcerative Colitis) by a Colonoscopy. The...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.