Welcome - Primary Orthostatic Tremor (POT) Community

What is Primary Orthostatic Tremor (POT) ?

“Primary Orthostatic tremor is a very rare progressive brain disorder often misdiagnosed as Parkinson’s. The tremor is usually five times the frequency of Parkinson’s and it is very difficult to observe, the tremor needs to be confirmed electrically via an EMG test to confirm its severity. The tremor makes it almost impossible for the patient to stand even for a few seconds.”

Source: NTF UK POT Support Blog

Primary Orthostatic Tremor (POT) Resources

More members stories

Latest Member Stories

P.O.T. is no potluck!

by manonwatters published about 1 month ago
2 comments

I commute to work by bus. So I have to keep walking and turning around or find a something to rest on before the bus arrives, in order to be among ...

MY P.O.T

by HULAKULA published about 1 month ago
One comment

I'm 61 and at 57 I started to feel tired in my legs but they told me they had to be connected with little physical activity etc. etc. Then I did ge...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.