Welcome - Primary Orthostatic Tremor (POT) Community

What is Primary Orthostatic Tremor (POT) ?

“Primary Orthostatic tremor is a very rare progressive brain disorder often misdiagnosed as Parkinson’s. The tremor is usually five times the frequency of Parkinson’s and it is very difficult to observe, the tremor needs to be confirmed electrically via an EMG test to confirm its severity. The tremor makes it almost impossible for the patient to stand even for a few seconds.”

Source: NTF UK POT Support Blog

Primary Orthostatic Tremor (POT) Resources

More members stories

Latest Member Stories

Diagnosed this week

by Mairi published 23 days ago

Not much to tell that is new (for other people- it's all new to me). It has taken 4 years to get a diagnosis of my shaky legs etc. And I only found...


by THIERRY published 9 months ago

Progressive disease diagnosed when I was 55, exams done at hospital saint antoine in Paris confirmed in 2012, I take rivotril (8 drops a day) ever ...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.