Welcome - Primary Orthostatic Tremor (POT) Community

What is Primary Orthostatic Tremor (POT) ?

“Primary Orthostatic tremor is a very rare progressive brain disorder often misdiagnosed as Parkinson’s. The tremor is usually five times the frequency of Parkinson’s and it is very difficult to observe, the tremor needs to be confirmed electrically via an EMG test to confirm its severity. The tremor makes it almost impossible for the patient to stand even for a few seconds.”

Source: NTF UK POT Support Blog

Primary Orthostatic Tremor (POT) Resources

More members stories

Latest Member Stories


by chantal published 6 months ago 16 comments

For many years I've seen different specialists, among whom a neurologist, who provided no answer on the origin of my troubles.

In 2007 my legs s...


by THIERRY published 6 months ago 2 comments

Progressive disease diagnosed when I was 55, exams done at hospital saint antoine in Paris confirmed in 2012, I take rivotril (8 drops a day) ever ...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.