Welcome - Primary Orthostatic Tremor (POT) Community
What is Primary Orthostatic Tremor (POT) ?
“Primary Orthostatic tremor is a very rare progressive brain disorder often misdiagnosed as Parkinson’s. The tremor is usually five times the frequency of Parkinson’s and it is very difficult to observe, the tremor needs to be confirmed electrically via an EMG test to confirm its severity. The tremor makes it almost impossible for the patient to stand even for a few seconds.”
Source: NTF UK POT Support Blog
Primary Orthostatic Tremor (POT) Resources
More members stories
Latest Member Stories
published 23 days ago
Not much to tell that is new (for other people- it's all new to me). It has taken 4 years to get a diagnosis of my shaky legs etc. And I only found...
published 9 months ago
Progressive disease diagnosed when I was 55, exams done at hospital saint antoine in Paris confirmed in 2012, I take rivotril (8 drops a day) ever ...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.