Welcome - Primary Orthostatic Tremor (POT) Community

What is Primary Orthostatic Tremor (POT) ?

“Primary Orthostatic tremor is a very rare progressive brain disorder often misdiagnosed as Parkinson’s. The tremor is usually five times the frequency of Parkinson’s and it is very difficult to observe, the tremor needs to be confirmed electrically via an EMG test to confirm its severity. The tremor makes it almost impossible for the patient to stand even for a few seconds.”

Source: NTF UK POT Support Blog

Primary Orthostatic Tremor (POT) Resources

More members stories

Latest Member Stories

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by RareConnect team published about 1 month ago No comment

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by wendyluba published 4 months ago 2 comments

I live in the the northeast part of the United States in New Hampshire and the earliest I remember having regular tremors under stress was in the 1...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.