Canadian Association for Porphyria
Here's a selection of information from patients & professionals to better understand Porphyria.
The mission of the Canadian Association for Porphyria/Association Canadienne de Porphyrie is:
-to promote health by providing individuals with porphyria access to related counselling, information, and group support programs.
-to create and maintain a Canadian porphyria patient registry which will centralize information, and enable the provision of specialized information and services to the porphyria population.
-to increase the medical profession’s and the public’s knowledge about porphyria through a website, seminars, presentations, educational booths, pamphlets, and information forums.