Here's a selection of information from patients & professionals to better understand Porphyria.

Website: http://www.epp-deutschland.de/

The EPP Patient sees it as mission to promote networking among stakeholders. As a rare disease with complex inheritance is often only one member of a family affected and most doctors have rarely or never seen a patient with EPP. The sharing of tips and experiences with each other and the provision of information for example parents and teachers / educators is important to us. Email: vorstand@epp-deutschland.de