Pityriasis Rubra Pilaris (PRP) Community

Here's a selection of information from patients & professionals to better understand Pityriasis Rubra Pilaris (PRP).

These patient organizations have experience and expertise in Pityriasis Rubra Pilaris (PRP). Please contact them directly for more information on their activities.

 PRP SURVIVAL GUIDE

 

 

The PRP Survival Guide is an ever-expanding knowledge bank of easy-to-access information specifically related to the onset, diagnosis, treatment, remission and/or maintenance of pityriasis rubra pilaris. The PRP Survival Guide reflects the PRP-related experiences as reported by patients and their caregivers through the PRP Facebook Support Group and other support forums.

GO TO: http://prpalliance.com/home/survival-guide/

  • PRP Alliance, Inc.

    The PRP Alliance is a 501(c)(3) dermatology patient organization. We advocate for the timely and accurate diagnosis of pityriasis rubra pilaris (PRP); the implementation of more effective and accessible treatment options; increased PRP-specific research and reducing the burden that PRP has on body, mind and spirit of adults and children.

    Contact PRP Alliance, Inc.
  • PRP Facebook Support Group

    Founded in April 2013, the 600-plus member PRP Facebook Community believe that people who care, share and people who share, teach. Members share their PRP experiences and insights to help others meet the challenges of body, mind and spirit. Members share milestones of healing and the disappointment of a flare, what works and what doesn’t work. Whether you need a shoulder on which to cry or a partner for a Dance of Joy — people who care, share and people who share, teach.

    Contact PRP Facebook Support Group