All Pityriasis Rubra Pilaris FAQs

Here's a selection of information from patients & professionals to better understand Pityriasis Rubra Pilaris.

  • What did I do to deserve to suffer with this awful condition?

    PRP isn’t a punishment for misbehavior or forgetting to put the seat down on a toilet (loo in some parts of the world). There are thousands of perfectly wonderful people who have — or had — PRP. Mo...

  • What causes PRP?

    Research in Israel (Tel Aviv University) discovered that a genetic mutation is the cause of Familial PRP. The jury is still out on “acquired” PRP.

  • How can I be sure the diagnosis is right?

    Every so often a diagnosis of PRP is rescinded in favor of another malady. Just as psoriasis or dermatitis can mimic PRP and delay diagnosis and treatment, PRP can mask other diseases, including Sé...

  • What is PRP?

    Pityriasis rubra pilaris (PRP) is a group of rare skin disorders that cause inflammation and shedding of the skin. Typically, PRP appears first as a small spot and then spreads to the entire body. ...

  • Is there a cure for PRP?

    Not yet. While no cure as yet to be found, several medicines are being used effectively to help alleviate some of the symptoms. Just keep this in mind: what works for one, does not work for all. Se...

  • Is PRP contagious?

    While PRP is not contagious, it is important to include the phrase “not contagious” early-on in any conversation with someone you know or the person who stares at your red and flaking skin in the c...

  • How rare is PRP?

    The rarity of PRP is a double-edge sword. On one hand we get the short end of the stick on research, access to drugs and access to a relatively small pool of PRP-savvy dermatologists.
    On the other...

  • What are the types of PRP?

    PRP seems to come in two flavors: Adult and Juvenile. Adult Onset can be either Classic, which is why it is called Classic Adult Onset, or it can be something other than Classic which is why they c...