Pityriasis Rubra Pilaris (PRP) Community

Meet, discuss & support other patients or families living with Pityriasis Rubra Pilaris (PRP). Contribute to topics, or just share what's on your mind

BillMcCue
moderator

AAD Video Released

We all know that PRP is a rare disease. There are over 7,000 rare diseases and over 1,000 rare SKIN disorders. We fight to tell our story. And then the American Academy of Dermatology produces an advertisement for social media. Cutaneous lymphoma. Hypohidrotic ectodermal dysplasia, Pemphigus vulgaris. PITYRIASIS RUBRA PILARIS.

And who are our stars? Ginny Maxwell and her family of PRP advocates. Click the link.

https://twitter.com/AADskin/status/8475477...