Welcome - Pityriasis Rubra Pilaris (PRP) Community

What is Pityriasis Rubra Pilaris (PRP) ?

Pityriasis rubra pilaris (PRP) is a group of rare skin disorders that cause inflammation and shedding of the skin. It will impact different parts of the body in different ways for unpredictable periods of time while often accompanied by strong itching. The cause of PRP is unknown. Read More: http://prpalliance.com/2016/02/01/understanding-prp/
 

Pityriasis Rubra Pilaris (PRP) Resources

More members stories

Latest Member Stories

PRP baby 14 month old

by melissachance published 24 days ago
One comment

Hello!

Back when Saylor was 6/7 weeks she started with a small rash on both shoulders. We put this down to the rubbing of clothing. After a wh...

Life of a PRP carer

by taniagray published about 1 month ago
6 comments

I hear to often the words "you dont have the disease therefore you dont understand" those words are true, however it does affect the carer in othe...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.