Welcome - Pityriasis Rubra Pilaris (PRP) Community

What is Pityriasis Rubra Pilaris (PRP) ?

Pityriasis rubra pilaris (PRP) is a group of rare skin disorders that cause inflammation and shedding of the skin. It will impact different parts of the body in different ways for unpredictable periods of time while often accompanied by strong itching. The cause of PRP is unknown. Read More: http://prpalliance.com/2016/02/01/understanding-prp/

Pityriasis Rubra Pilaris (PRP) Resources

More members stories

Latest Member Stories

Still learning about PRP

by joanpendergast published 16 days ago

My hair dresser first noticed changes in my scalp. Red like rash all over. Went to dermatologist. Triamcinolone Crm and light treatments. No change...


by christinegnther published 17 days ago
No comment


Dear members of the PRP Community on RareConnect

Bill McCue and I are very excited about welcoming many new members in our Co...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.