Welcome - Pemphigus and Pemphigoid Community

What is Pemphigus and Pemphigoid ?

Pemphigus and pemphigoid are rare, autoimmune, blistering diseases where a person’s antibodies attack healthy skin cells instead of viruses and harmful bacteria.

Source participating patient organizations visible below

Pemphigus and Pemphigoid Resources

More members stories

Latest Member Stories

My Journey with Pemphigus

by WorthPem1 published 13 days ago
No comment

Pemphigus vulgaris
My Story

In September1973 at the age of 24, I developed itchy and crusting lesions on my scalp which did not respond to ov...

Recent Pemphigus Diagnosis

by Kaitlynn published 3 months ago
7 comments

3 Weeks of constant pain and itching. 3 weeks of oozing blisters that stuck to my clothes and made me feel like the most disgusting human in the wo...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.