Welcome - Pemphigus and Pemphigoid Community

What is Pemphigus and Pemphigoid ?

Pemphigus and pemphigoid are rare, autoimmune, blistering diseases where a person’s antibodies attack healthy skin cells instead of viruses and harmful bacteria.

Source participating patient organizations visible below

Pemphigus and Pemphigoid Resources

More members stories

Latest Member Stories

What is wrong with me?

by ElinFiona published 1 day ago
One comment

Have you ever felt a vacuum moving through your arms and legs, like your inner skin are ripped off? This happened to me January 2016. It was extrem...

Child with mucous membrane pemphigoid

by smez published 16 days ago
One comment

Hello everyone, I have never done anything like this online before (I don't even have facebook) so this feels a little exposing. I have been readin...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.