Welcome - Paraneoplastic Neurological syn. (PNS) Community

What is Paraneoplastic Neurological syn. (PNS) ?

Paraneoplastic Neurological Syndromes (PNS) are a group of rare degenerative neurological disorders linked to an auto-immune response to cancer.

Source: Participating patient organizations visible below

Paraneoplastic Neurological syn. (PNS) Resources

More members stories

Latest Member Stories

Rare Disease Day 2015

by RareConnect team published 2 months ago No comment

Rare Disease Day takes place on the last day of February each year.

The main objective of Rare Disease Day is to raise awareness amongst the gen...

The nurse takes a ride.

by MELSINA published 6 months ago 2 comments

The ride started with misdiagnosis of narcolepsy and then Paraneoplastic Syndrome.  And from all I read the later is a ride that you never get off...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.