Welcome - Paraneoplastic Neurological syndrome (PNS) Community

What is Paraneoplastic Neurological syndrome (PNS) ?

Paraneoplastic Neurological Syndromes (PNS) are a group of rare degenerative neurological disorders linked to an auto-immune response to cancer.

Source: Participating patient organizations visible below

Paraneoplastic Neurological syndrome (PNS) Resources

More members stories

Latest Member Stories

Keep On Keepin' On

by sh-b published 2 days ago
One comment

« My balance & movement issues began when I contracted para-neoplastic syndrome 12 years ago. (My symptoms led the doctors to discover that I had a...

The nurse takes a ride.

by MELSINA published about 1 year ago

The ride started with misdiagnosis of narcolepsy and then Paraneoplastic Syndrome.  And from all I read the later is a ride that you never get off ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.