Welcome - Paraneoplastic Neurological syndrome (PNS) Community

What is Paraneoplastic Neurological syndrome (PNS) ?

Paraneoplastic Neurological Syndromes (PNS) are a group of rare degenerative neurological disorders linked to an auto-immune response to cancer.

Source: Participating patient organizations visible below

Paraneoplastic Neurological syndrome (PNS) Resources

More members stories

Latest Member Stories

Living with PNS in Australia

by Raymond published 4 months ago

My wife was diagnosed with Paraneoplastic Cerebellar Degeneration in 1992 as a result of ovarian cancer. She started losing her balance and coordi...

Keep On Keepin' On

by sh-b published 5 months ago

« My balance & movement issues began when I contracted para-neoplastic syndrome 12 years ago. (My symptoms led the doctors to discover that I had a...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.