Welcome - Paraneoplastic Neurological syndrome (PNS) Community

What is Paraneoplastic Neurological syndrome (PNS) ?

Paraneoplastic Neurological Syndromes (PNS) are a group of rare degenerative neurological disorders linked to an auto-immune response to cancer.

Source: Participating patient organizations visible below

Paraneoplastic Neurological syndrome (PNS) Resources

More members stories

Latest Member Stories

The nurse takes a ride.

by MELSINA published about 1 year ago
3 comments

The ride started with misdiagnosis of narcolepsy and then Paraneoplastic Syndrome.  And from all I read the later is a ride that you never get off ...

PND and Small Cell Lung Cancer

by Abesquared published about 1 year ago
6 comments

On Memorial Day of this year, my dad was fine. He started having double vision. He started throwing up everything he ate. He started shaking and lo...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.