Neurodegeneration with Brain Iron Accumulation (NBIA) Community

Here's a selection of information from patients & professionals to better understand Neurodegeneration with Brain Iron Accumulation (NBIA).

Here are some of the most frequently asked questions and their answers:

If you are a carer with a question about living with NBIA, about treatments, or other relevant information please email your question to webmaster@rareconnect.org and we will put it to the specialists who have agreed to answer your questions from time to time.

There is no FAQ for this community or specific disease yet.