Neurodegeneration with Brain Iron Accumulation (NBIA) Community

Meet, discuss & support other patients or families living with Neurodegeneration with Brain Iron Accumulation (NBIA). Contribute to topics, or just share what's on your mind

Late onset NBIA

Greetings everyone. Recently my initial diagnosis of NBIA made in August of this year was confirmed. There is a fantastic support system and a 'team' has been assembled to deal with symptoms as they present. This late onset, very late atypical onset NBIA. I would be most interested in trading experiences with anyone else with late onset NBIA.