Neuroacanthocytosis (NA) Community

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martacampabadal
moderator

WE ARE LOOKING FOR PEOPLE AFFECTED BY CHOREA ACANTHOCYTOSIS FOR A RESEARCH PROJECT

If you or your loved one is affected by Chorea acanthocytosis you might find this message interesting.

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We are looking for people affected by Chorea acanthocytosis worldwide. The reason is the launch of a research project with two main objectives:

- Create a therapy to stop and combat chorea acanthocytosis.
- Make a screening of drugs for other diseases with similar symptomatology that can offer improvements in symptoms produced by Chorea acanthocytosis ..

We need to know the number of people diagnosed with chorea acanthocytosis to inform and give the lab relevant data on the impact of the disease and share the results with the patients who would like to stay informed.

If you want to collaborate with us we’d ask you to get in touch with us as soon as possible:
- Alejo Montoliu, leader of the research project: Alejo.Montoliu@agentes.novobanco.es

- Marta Campabadal, RareConnect Coordinator at EURORDIS: marta.campabadal@eurordis.org

If you have any questions or want to know more about this project do not hesitate to contact us.

Regards,
Marta