Neuroacanthocytosis (NA) Community

Meet, discuss & support other patients or families living with Neuroacanthocytosis (NA). Contribute to topics, or just share what's on your mind

Up before the count

Great News my book Up Before The Count is finally out for sale so go to and check it out today!
Author Edwin Ayala was diagnosed with the extremely rare and incurable condition called choreacanthocytosis in 2003. This is his story. The condition is so rare that little information on this disease is available, but here is a brief synopsis: known as ChAc it has no known cure and its cause is not definitively known. Difficult to diagnose, its symptoms include fatigue, loss of speech, loss weight due to involuntary biting of the cheeks and tongue, difficulty in swallowing, and involuntary muscle movement. To learn more about this progressive disease, visit


Great news Ed- well done- will be in the next NANews!!

Thanks a billion

Good for you. very exciting news!