Neuroacanthocytosis (NA) Community

Meet, discuss & support other patients or families living with Neuroacanthocytosis (NA). Contribute to topics, or just share what's on your mind

Botox?

Hi. Has anyone tried Botox to help with swallowing? I had a very low dosage on Jan 16th so far no improvement. I pray it works.

louise_d
moderator

Hi Mike
Did you receive any e-mail replies after this post? Are you continuing with the Botox and has there been any noticeable change to date?
Wishing you well, Louise

Hi Louise,

I have had 2 Bortox injections to date. No improvement yet, but will continue to try.

gingerirvine
moderator

Hi Mike

Sorry not to have replied sooner- will write to a patient in Essex who has botox injections every three months which helps a lot- maybe he can connect with you directly. Best, Ginger

Thanks...I am going for a third injection in May.

Yes the botox helps...I get injections in my temples and jaw every 3 months