Welcome - Neuroacanthocytosis (NA) Community

What is Neuroacanthocytosis (NA) ?

Neuroacanthocytosis is a group of four severe movement disorders: Chorea-acanthocytosis or ChAc, McLeod Syndrome or MLS, Huntington’s disease-like 2 or HD-like2 and pantothenate kinase associated neurodegeneration or PKAN. All have similarities with Huntington’s and Parkinson’s diseases. There are no cures yet, but that does not mean that we are helpless. Here are stories of what patients and their families do to help one another and encourage doctors to hurry in their search for a therapy.

Source: Participating patient organizations visible below

Neuroacanthocytosis (NA) Resources

More members stories

Latest Member Stories

Coming soon my new book

by edwinayala published about 22 hours ago
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It's my autobiography and here's the cover

Confirm your diagnosis: “My gift”

by RareConnect team published 3 months ago
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When I proposed to Isabel, she smiled her beautiful smile and said, "Of course I'll marry you!". During our dinner, I ignored it in my happiness ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.