Welcome - Narcolepsy Community

What is Narcolepsy ?

Narcolepsy is a neurological sleep disorder that can begin at any age and continues throughout life. The primary symptoms are excessive daytime sleepiness, cataplexy (sudden loss of voluntary muscle control, usually triggered by emotions) and disrupted nighttime sleep.

Source: Participating patient organizations visible below

Narcolepsy Resources

More members stories

Latest Member Stories

What is wrong with me?

by ElinFiona published 1 day ago
One comment

Have you ever felt a vacuum moving through your arms and legs, like your inner skin are ripped off? This happened to me January 2016. It was extrem...

Me and my narcolepsy

by bradly00 published 24 days ago
No comment

At 16 years old, I would sleep at the wheel while driving my car. My mom took me to the hospital for an examination. And the doctor diagosed me wit...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.