Welcome - Narcolepsy Community

What is Narcolepsy ?

Narcolepsy is a neurological sleep disorder that can begin at any age and continues throughout life. The primary symptoms are excessive daytime sleepiness, cataplexy (sudden loss of voluntary muscle control, usually triggered by emotions) and disrupted nighttime sleep.

Source: Participating patient organizations visible below

Narcolepsy Resources

More members stories

Latest Member Stories

Shorty's Story

by shortysmith published 4 months ago

I am 21 years old, and it took roughly five years to diagnose my condition. I suffer from extreme bouts of sleepiness throughout the day falling as...

How Narcolepsy Changed The Course Of My Life Without Me Knowing It

by bmv1989 published about 1 year ago

Until about age 12. The daytime problems were present by middle school. The first class I remember falling asleep in was my 6th grade math class a...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.