Welcome - Narcolepsy Community

What is Narcolepsy ?

Narcolepsy is a neurological sleep disorder that can begin at any age and continues throughout life. The primary symptoms are excessive daytime sleepiness, cataplexy (sudden loss of voluntary muscle control, usually triggered by emotions) and disrupted nighttime sleep.

Source: Participating patient organizations visible below

Narcolepsy Resources

More members stories

Latest Member Stories

Potentially dangerous medication

by 2live published 3 months ago

My daughter was diagnosed with narcolepsy when she was 12. She laughed at a funny story being told in the school library and according to her teac...

Me and my narcolepsy

by bradly00 published 5 months ago

At 16 years old, I would sleep at the wheel while driving my car. My mom took me to the hospital for an examination. And the doctor diagosed me wit...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.