Welcome - Myositis Community

What is Myositis ?

Myositis is a general term meaning inflammation of the muscles, myositis includes the following diseases:

  • dermatomyositis
  • inclusion body myositis
  • juvenile myositis
  • polymyositis

The above diseases are also referred to as inflammatory myopathies. They cause inflammation within muscle and muscle damage.

Myositis Resources

More members stories

Latest Member Stories

Symptoms of Irene born 20.12.1937

by RareConnect team published 6 months ago
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1. Symptoms of Inclusion-body myositis

2.Disease history

- Since 1998 sporadic buckling of the right knee. Falls, mostly backwards,...

A report on dermatomyositis with associated macrophagic myofasciitis as a result of ASIA syndrome

by RareConnect team published 6 months ago
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I went to the doctor’s, had my vaccination, and the next day my arm was slightly red and warm where the needle had gone in. “That’s pretty normal w...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.