Welcome - Multiple System Atrophy (MSA) Community

What is Multiple System Atrophy (MSA) ?

Multiple system atrophy (MSA) is a degenerative, neurological disorder.

Source: Participating patient organizations visible below

Multiple System Atrophy (MSA) Resources

More members stories

Latest Member Stories

Hello, my husband has been diagnosed with cerebellar multiple system atrophy.

by bastian_5 published about 1 month ago
One comment

It started in 2003, with some loss of balance and dysarthria. Since then, he has been losing functions.
He started using a cane at first but he's...

Partnering with medical professionals as support group!

by Ritje published 6 months ago
7 comments

2000-2006: It took 6 years to obtain the correct diagnosis. 6 years of a crusade to be heard, to find a cure, to find someone who cares!

When c...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.