Welcome - Moyamoya disease Community

What is Moyamoya disease ?

Moyamoya disease is a rare blood vessel (vascular) disorder in which a ring of blood vessels at the base of your brain (the circle of Willis) and the uppermost (distal) segments of the arteries supplying the brain progressively narrow, causing blood flow to your brain to become reduced.

The condition may cause a ministroke (transient ischemic attack), stroke or other symptoms. Moyamoya disease mainly affects children, but adults may have the condition. Moyamoya disease usually occurs in people from Japan and other Asian countries, but people in North America, Europe and other areas also have moyamoya disease.

Source: patient groups visible below

Moyamoya disease Resources

More members stories

Latest Member Stories

Living with Moyà Moyà

by Betterfuture published 8 months ago

Hi all, my name is Navida....
I was diagnosed with Moyà Moyà at the age of 19 after already suffering 2 strokes and a 2 Tia's,I was at a very cruc...

My experience so far

by melissaann published 8 months ago
One comment

After a year of lots of tests An doctors appointments I was diagnosed with this rare disease called moyamoya disease, I went in for an angiogram Au...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.