Welcome - Moebius syndrome Community

What is Moebius syndrome ?

Moebius syndrome is a rare neurological condition resulting in facial paralysis that may include respiratory, eye, limb, speech, hearing and other disorders. 

Source: Participating patient organizations visible below

Moebius syndrome Resources

More members stories

Latest Member Stories

Martina, Moebius Syndrome

by yolanda_ruiz published 8 months ago
One comment

I was a very desired and sought after child. When born, my crying was very weak and I was pulling faces when crying, but as we are sometimes a bit ...

Moebius Syndrome

by marine-maelya published 8 months ago

When my daughter was born she did not cry like other babies. Her mouth was closed, her face had no expression, one could hear the sound of that cry...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.