Welcome - Moebius syndrome Community

What is Moebius syndrome ?

Moebius syndrome is a rare neurological condition resulting in facial paralysis that may include respiratory, eye, limb, speech, hearing and other disorders. 

Source: Participating patient organizations visible below

Moebius syndrome Resources

More members stories

Latest Member Stories

Moebius Syndrome

by marine-maelya published 9 months ago

When my daughter was born she did not cry like other babies. Her mouth was closed, her face had no expression, one could hear the sound of that cry...

Support for Juanfe

by gloris published about 1 year ago
One comment

My baby requires specialized medical attention as well as therapies that would help him to improve his quality of life. Here in my country, COLOMBI...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.