Welcome - Mastocytosis and Mast Cell Activation Disorders Community
What is Mastocytosis and Mast Cell Activation Disorders ?
Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.
Source: Participating patient organizations visible belowMastocytosis and Mast Cell Activation Disorders Resources
Latest Member Stories
Since childhood, I've been suffering from all the allergies you can imagine. I'm allergic to all fruits, except for oranges (wowwwwwwww!). I'm into...
Partners and Patient Groups
RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.
- The Mastocytosis Society
- Mastozytose Initiative
- UK Mastocytosis Support Group
- Mastocytosis Society Canada
- ASIMAS Mastocitosi
- Asociación Española de Mastocitosis
- Murray-Wood Foundation
- Asociatia Bolnavilor de Mastocitoza
- Mastcellssjukdomar Sverige
- The Australasian Mastocytosis Society (TAMS)