Welcome - Mastocytosis and Mast Cell Activation Disorders Community

What is Mastocytosis and Mast Cell Activation Disorders ?

Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.

Source: Participating patient organizations visible below

Mastocytosis and Mast Cell Activation Disorders Resources

More members stories

Latest Member Stories

Allergic to Everything

by 27bayview published 11 days ago
4 comments

The good news is I’m not crazy!! After years and years of feeling like there was something wrong with me; not tolerating meds, allergic to an unen...

Newborn With Mastocytosis

by Hramirez published 2 months ago
3 comments

My son was born with what Doctors had believed to be new born rash. For weeks we were told that his rash would clear. We were told to expect it to ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.