Welcome - Mastocytosis and Mast Cell Activation Disorders Community

What is Mastocytosis and Mast Cell Activation Disorders ?

Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.

Source: Participating patient organizations visible below

Mastocytosis and Mast Cell Activation Disorders Resources

More members stories

Latest Member Stories

My Story – Lisa

by LisaThuler published 17 days ago

I won´t go into great detail because my story is a long and complex journey, but it´s enough to say that while I was in the process of getting my s...

HELP with systemic mastocytosis!!!

by brad63 published 17 days ago

For years I have had attacks of hives (welps), sweating, losing consciousness from 30-45 seconds up to 25 minutes, sometimes several losses of cons...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.