Welcome - Mastocytosis and Mast Cell Activation Disorders Community

What is Mastocytosis and Mast Cell Activation Disorders ?

Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.

Source: Participating patient organizations visible below

Mastocytosis and Mast Cell Activation Disorders Resources

More members stories

Latest Member Stories

I just found out I have Mastocytosis

by jellycocanougher published 11 days ago
11 comments

I'm 25 years old and recently diagnosed with Mastocytosis (going to see a hematologist soon to see if I have systemic Mastocytosis in a few weeks)....

I Have Mast Cell Disease But That's OK!

by MichelleDellene published about 1 month ago
5 comments

It hasn't been easy getting a proper diagnosis here in SE Idaho, but that's only because my doctors don't know much about this disease and I can ha...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.