Welcome - Mastocytosis and Mast Cell Activation Disorders Community

What is Mastocytosis and Mast Cell Activation Disorders ?

Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.

Source: Participating patient organizations visible below

Mastocytosis and Mast Cell Activation Disorders Resources

More members stories

Latest Member Stories

A Short Summary of My Complex Story

by murraymeetze published 16 days ago

I live in Colorado but am originally from South Carolina. I have Ehlers-Danlos Syndrome (EDS, currently diagnosed Hypermobility, Type 3), Autosomal...

Mastocytosis journey

by yvonne77 published 23 days ago

I was an avid Ballet dancer in childhood, even though I had the worst "growing pains" known to mankind. During these "growing pains" - mind you tha...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.