Welcome - Mastocytosis and Mast Cell Activation Disorders Community

What is Mastocytosis and Mast Cell Activation Disorders ?

Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.

Source: Participating patient organizations visible below

Mastocytosis and Mast Cell Activation Disorders Resources

More members stories

Latest Member Stories

My baby girls with Mastocytosis

by andreiitavsaez published 4 days ago
2 comments

The paediatrician referred us to a neurologist... As they thought it could be neurofibromatosis... the neurologist just by looking at her ruled out...

Newborn With Mastocytosis

by Hramirez published 15 days ago
2 comments

My son was born with what Doctors had believed to be new born rash. For weeks we were told that his rash would clear. We were told to expect it to ...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.