Welcome - Mastocytosis and Mast Cell Activation Disorders Community

What is Mastocytosis and Mast Cell Activation Disorders ?

Mastocytosis is a rare disorder characterized by abnormal accumulations of mast cells in skin, bone marrow, and internal organs such as the liver, spleen and lymph nodes. In the disorders of mast cell activation, mast cells are easily triggered to release their mediators, resulting in many of the same symptoms as systemic mastocytosis.

Source: Participating patient organizations visible below

Mastocytosis and Mast Cell Activation Disorders Resources

More members stories

Latest Member Stories

This is my Life now

by ju_wall13 published 3 months ago
3 comments

It’s not human. Totally insidious, this disease is not an easy one to wrap your mind around. As I lie alone in bed at night and the cycling begins,...

I Am ALWAYS Sick With Something

by samanthalouie published 3 months ago
7 comments

My name is Samantha Louie. I am from California. I had two liver transplants as an infant roughly around the years 1993-1994. The first one rejecte...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.