Welcome - Marinesco-Sjogren Syndrome (MSS) Community
What is Marinesco-Sjogren Syndrome (MSS) ?
Marinesco-Sjogren Syndrome (or Marinescu-Sjogren Syndrome) is a very rare genetic disorder characterized by ataxia (balance and coordination problems), juvenile cataracts, generally some degree of cognitive delay, and small stature.
Source: Patient groups listed below
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Partners and Patient Groups
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.