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Lymphangiomatosis and Gorham's Disease

Official Community

Lymphangiomatosis and Gorham’s Disease are rare lymphatic malformations affecting organs and bones also known as GLA (Generalized Lymphatic Anomalies) and GSD (Gorham-Stout Disease). GSD is a rare musculoskeletal condition in which spontaneous, progressive resorption of the bone occurs. In medical terminology lymphangiomatosis means: lymphatic system (lymph) vessel (angi) tumor or cyst (oma) condition (tosis). Kaposiform lymphangiomatosis is distinctive from GLA with abnormal spindle-shaped lymphatic cells.There is no standard definition describing this disease that has been agreed to by the medical/scientific community.