Lymphangioleiomyomatosis (LAM) Community

Here's a selection of information from patients & professionals to better understand Lymphangioleiomyomatosis (LAM).

Here are some of the most frequently asked questions and their answers:

If you are a patient or carer with a question about living with LAM, about treatments, or other relevant information please write your question to the forum section.

  • How to treat LAM?

    Unfortunately there is no cure for LAM as yet. However there is now evidence to show that one drug (sirolimus or Rapamycin) can slow the rate of decline in lung function and reduce the size of the ...

  • How is LAM diagnosed?

    Many symptoms of LAM are similar to those of more common lung diseases such as asthma and for this reason patients may have symptoms for some time before LAM is diagnosed. Symptoms, X-rays and brea...

  • What are the symptoms of LAM?

    LAM affects different patients in different ways. The main problem usually is breathlessness, particularly when patients exert themselves. This is due to the effect of the cells on the airways and ...

  • What is the cause of LAM?

    The cause of sporadic LAM is at present unknown. We know that it is not inherited and it is not passed on to children. We also know that one of two proteins (called tuberin and hamartin) are abnorm...

  • What Is LAM?

    LAM is a rare disorder that occurs only in women and is generally diagnosed in women of childbearing age. LAM mainly affects the lungs, where an abnormal type of cell (called a LAM cell) builds up....