Lymphangioleiomyomatosis (LAM) Community

Meet, discuss & support other patients or families living with Lymphangioleiomyomatosis (LAM). Contribute to topics, or just share what's on your mind


Join RareConnect online communities for your European Patient Advocacy Group

If you are a PATIENT REPRESENTATIVE based in the EU you can now register for the RareConnect online community connected to the European Patient Advocacy Group (ePAG) that is relevant to your disease.

Join the ePAG online community on RareConnect to stay informed about the activities of the Rare Pulmonary Diseases European Reference Network that represents your disease(s) and to connect with ePAG patient representatives and clinical leads to learn more about their work with the ERNs.

Please request access to your ePAG online community by clicking on the link below.

(you will be granted access within the 24 hours after your request)