Welcome - Lymphangioleiomyomatosis (LAM) Community

What is Lymphangioleiomyomatosis (LAM) ?

Lymphangioleiomyomatosis (LAM) is a rare disease that occurs only in women. LAM predominantly affects the lungs, where it causes excessive growth of smooth muscle cells which progressively destroy lung tissue and erode lung function. 

Source: LAM Foundation

Lymphangioleiomyomatosis (LAM) Resources

More members stories

Latest Member Stories

Lymphangioleiomyomatosis in Cyprus

by Pieridou39 published 5 months ago
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On 27/3/2012 I was working and I didn't feel very well. In the night when I went home I couldn't breath, I was having dyspnea. On 28/3/2012 it was ...


by RareConnect team published 6 months ago
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At this time my daughter was 12 years old and I was a single mother working full time as a teacher of nursing. In the following months my fears for...

Partners and Patient Groups

RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.