Lowe Syndrome Community

Meet, discuss & support other patients or families living with Lowe Syndrome. Contribute to topics, or just share what's on your mind

I Lowe you! Participative research project for the Study of Lowe Syndrome

We want to share with you this crowdfunding project that aims to raise money for Lowe Syndrome research.
We have already brought together families from several countries that, through data sharing with specialists, and through their associations, are generating more knowledge about the disease.
On this video (in Spanish) we presented the project on Spanish TV
http://www.rtve.es/alacarta/videos/para-to... /

If you want to help us spread our project, which is a European project! not just a Spanish project, we'll be very grateful!


Hallo Manuel, vielen Dank für das was Ihr schon alles in Bewegung gesetzt habt!
Herzliche Grüße, Marion